The APMRF grant program supports an international research program to expedite a treatment and cure for NPC disease; to promote collaborative research efforts among the world’s leading experts in cholesterol metabolism, cell biology, neurobiology, genetics, pharmacology and other areas of science; and to study similar and further the cause of other neurodegenerative diseases as well as cholesterol storage disorders.
Alongside providing support and care for those living with or affected by Niemann-Pick disease, one of our other main areas of focus is providing information relating to research. NPUK shares knowledge, expertise and works in partnership and collaboration with other not-for-profit organisations, medical authorities and scientific institutions across the world, in order to facilitate progress towards therapeutic interventions for the Niemann-Pick disease.
Where possible, NPUK also funds appropriate research in order to improve medical and scientific knowledge and promote understanding of the disease.
Support Of Accelerated Research for Niemann-Pick C, or SOAR-NPC, was created by parents and scientists as a grassroots response to the absence of treatments for this terminal disease.
The number one goal of SOAR-NPC is to work as quickly as possible to find evidence-based treatments and ultimately a cure for Niemann-Pick Type C disease, a rare neurological illness.
SOAR scientists are internationally recognized in NPC research from institutions including Washington University in St. Louis, Albert Einstein College of Medicine, and University of Pennsylvania. SOAR family foundations are dedicated to raising money and awareness to combat this deadly disease.