NPC disease is rare, but the NPC community is vast. The community continues to grow across the globe and many organizations have formed to help NPC communities collaborate.
This page is dedicated to the many NPC organizations all over the world. It also notifies the conferences available to meet and hear from NPC scientists, clinicians, and families and if the organizations support research grants.
Foundations/Organizations That Host an Annual Conference
Ara Parseghian Medical Research Fund (APMRF) at Notre Dame
Australian NPC Disease Foundation Inc,
At Australian NPC Disease Foundation Inc, wellbeing is at the forefront of what we’re working together towards. We aim to support Australian patients of Niemann-Pick disease type C, and their families. Learn more about the positive impact we have and join us in bringing about positive change.